If you have been following me for awhile now. You know I have mentioned that I have CKD. Chronic Kidney Disease which stemmed from Type 1 Diabetes. I have done both In-Center Hemo-Dialysis and PD Dialysis which you can do at home every night, which by the way is much more healthier on your body then doing in center. I am posting this video, to help those of you who are maybe caretakers or in fact on Dialysis or might have to go on dialysis and you have options of living a more healthier lifestyle while awaiting a transplant,
Like myself, who has been a CKD patient since 2002. I was first on hemo or incenter dialysis until 2005, toward the end I went on PD dialysis from hemo, but until then and this is not all patients just me, I was constantly sick, after the treatment, I couldn’t travel, I couldn’t even get out of bed. 2 1/2 years of my life in bed, not good. I had my transplant that a friend gave me in August 2005. it lasted until November 2019, had to go back on dialysis, started off in center, and then I said, I want to do home PD, it had one so in 2005 and wanted to do this again, being a business owner now and very active now living here in Florida, I didn’t want to be in bed and being sick again.
Traveling with Dialysis
My experience and mine alone some people have different experiences, depending on your finances. As mentioned, I was sick a lot on in center, but when we had to travel, I had to set up appointment months in advanced with my social worker at center, if I had the time to do so, to let them know where I am going and if I can get a chair at the local center, Sometime, these were an hour away from where we were depending on if I was visiting my mother in Delaware, or going to Puerto Rico with my husband to see friends and family. You also need to make sure you insurance covers the destination you are going to with hemo, if you are in center, some insurances only cover for the state you live in, also health insurance doesn’t cover out of the country issues, that is why it is always recommended to get travel insurnce.
For those on PD dialysis or home dialysis, you have your machine and supplies, yes you have to let your center know where you are traveling and when in adequate enough time like 4-6 weeks for out of the country 2-4 week domestically to let the closest center know you will be in the area in case of an emergency.
Your will also see in the video, you can do manual treatments, so that you can don’t have to drag the machine with you.
Another thing, if you are driving to your destination you can just put all supplies etc in car and just plug in when get there or if you are flying or cruising you need to let your supply company know so they can forward your supplies to your destination, they will do so for free to national locations, and to the cruise ports in the USA, if you are going out of the country, you may have to pay for shipping charges, but it will get there, again, you need to give them a few weeks notice prior to traveling.
Dialysis at Sea
If you have heard there is an option called Dialysis at Sea, this is not an option for everyone. Why, it is very expensive to do. 1. Your insurance does not pay for it 2. You have to use Dialysis at Sea services, which include the doctor, nurse, the machine, etc. 3. It is not aon all cruise lines, Royal Caribbean and Celebrity only. You cannot do last minute planning, you have to be very flexible in your dates and where they are sailing from not all their ships and itineraries will offer it.
If you have more questions and concerns about PD dialysis or Hemo dialysis while traveling, please readh out to me at firstname.lastname@example.org and we can set up a time to chat.
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